Resources
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Alzheimer’s Society
Excellent, comprehensive set of resource on Alzheimer's disease and dementia.
Making a Will with a Dementia Diagnosis
FAQs with advice on making a Will after the onset of dementia. Many other resources about dementia as well.
In Their Eyes (Short Film)
Video about what it’s like for caretakers to deal with end-stage dementia.
Wills by State
Wills and legal documents by State. Free online completion of a Will or AD for each State.
What Dementia Feels Like
Blog post on symptoms and stories about what it's like to have dementia.
Looking After You the Best I Can
Film about early onset dementia. Cautionary tale about why it's important to create an Advance Directive (Living Will) early in life.
Going Home
Award-winning film about dementia. A cautionary tale about why it's important to make end-of-life decisions in advance.
National End of Life Doula Association (NEDA)
Helps you find a death doula by name or state. Site also has training and other resources for and about death doulas.
Death Doulas help you to prepare for death
Concise news story about the scope of what death doulas do.
What to expect at the end of life
Short video. Excellent preparation for caregivers caring for someone in the final weeks of life. Applicable to VSED. Applicable to decision to die at home.
List of Estate Planning Attorneys by State
List of attorneys that can help in making a Will.
National Hospice and Palliative Care Organization
Excellent resource for finding a hospice or palliative care program near you.
Compassion and Choices
Website for all things related to improving care, expanding options and empowering everyone to chart their end-of-life journey. Extensive set of resources for Advanced Directives, VSED, MAID, and other end-of-life care issues.
Respecting Choices
Training programs for healthcare professionals to enhance their knowledge and skills around collaborative end-of-life decision-making.
Prepare for your care: AD Tools and Videos
AD tools and videos to empower people to get started making AD decisions and to talk with providers.
End-of-Life Decision Guide
Online, interactive tool for completing AD with instructions and context. Can also be downloaded and printed.
Advanced Care Planning Tools
Best, outstanding comprehensive list of where to go to get AD tools and explanations. Also Advanced Care Planning training for professionals.
Advance Directive for Dementia
AD to be used in cases of dementia, specifying that you want to refuse all oral feedings in the case of dementia or to limit oral intake to comfort-focused feeding that must be stopped if you become disinterested or unwilling to be fed.